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Diagnosed w/brain cancer, need doctor recommendation
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Diagnosed w/brain cancer, need doctor recommendation

  #1 (permalink)
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Diagnosed w/brain cancer, need doctor recommendation

Hi

the son of a friend , he's 15 , and was recently diagnosed with brain cancer.
The doctors don't want to operate and told his father there is no hope.
I'm looking for recommendations for good doctors in the US or EU ,wherewith we can talk in order to explore other options urgently.

Thanks

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crazybears View Post
Hi

the son of a friend , he's 15 , and was recently diagnosed with brain cancer.

Hi crazybears

Sorry to hear about your friend's case. In our country we have several university hospitals that do operations.
The best I know of is in Berne / Switzerland: They do operate with a new system that can go down to 2mm
distance even at the most difficult places in the brain (where the motion center is). This was not possible
before.
Here a german link to a article showing the team operating brain cancer in the "Inselspital Berne":

Berner Ärzte operieren Hirntumore an gefährlicher Stelle - News Region: Kanton Bern - bernerzeitung.ch

Good luck!
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  #3 (permalink)
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Hi GFIs1

thanks

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I don't know anything about these guys, I've just seen their commercials, but they say they take a holistic approach to treatment and give the impression anyway that they are willing to try anything.


CTCA Cancer Treatment Centers & Hospitals | Integrative Cancer Care

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Maybe one of these places can help:

U.S. News Best Hospitals: Cancer

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GFIs1 View Post
..They do operate with a new system that can go down to 2mm
distance even at the most difficult places in the brain (where the motion center is). This was not possible
before.

As I see that the topic is of interest - I translated the above mentioned german article
so everybody can read without external help:

********

"Neurosurgeons of the Berne Inselspital have first developed a method by which it can remove as previously inoperable tumors in the applicable exercise center .
Now they have defined the security criteria for the method. Until recently, the movement center of the brain was considered a restricted area for neurosurgery . The few centimeters large area of the brain controls the arm and leg movements ; tumors are very difficult to remove there. The risk that you destroy the tumor and part of the invisible center of movement and the patient is subsequently paralyzed arms or legs , is very large.

Neurosurgeons of the Inselspital have now developed a method that makes the movement visible center for the surgeon , so that many of these tumors can be removed. They use a system that works like a radar - but with micro currents instead of radar waves .

With a millimeter wide probe the doctors stimulate the area around the tumor with currents between three and twenty milliamps . These micro- currents stimulate the brain cells of the movement center, which triggers arm , or leg movements .

They discovered that there is a reliable , direct relationship between the required amperage and the distance to the nerve cell. Thus, they can see how close the surgeons at the center of movement turn.

Operation on two millimeters distance

This " distance radar " , the surgeons operate on tumors that are only two millimeters away from the moving cells. " So that we can go much closer to the tumors than ever, and still be safe ," said Andreas Raabe, director and chief physician of the Department of Neurosurgery, Inselspital , against the news agency sda.

Until now, tumors could be operated directly in the center of movement usually not . Because the previously common monitoring method provided only information on whether the motion was grossly center nearby. Its exact distance to the tumor remained in the dark.

Now the Bernese doctors demonstrated in a recent study, the safety of the method. They operated 14 patients with tumors directly in the center of movement . The distance succeeded completely in 93 percent of them . The aim of the study was to find the right amperage that does not lead to new movement disorders.

Thanks to these safety criteria, there is now a tool to remove these previously inoperable tumors with greater security , said Raabe . They publish the results soon in the journal " Neurosurgery " .

The " distance - radar " method set the Bernese a neurosurgeon since 2009, and have thus been operated on 100 patients. ( cls / sda )

Created : 02/05/2012, 16:36 Clock"

******

GFIs1

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@crazybears, sorry to hear about this. I can't imagine what it would be like for his family.

I hope some others can give you good advice and you can find some doctors that will speak with you by phone or skype and then make a plan to save the boys life.

Mike

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Holy Family Hospital


crazybears View Post
Hi

the son of a friend , he's 15 , and was recently diagnosed with brain cancer.
The doctors don't want to operate and told his father there is no hope.
I'm looking for recommendations for good doctors in the US or EU ,wherewith we can talk in order to explore other options urgently.

Thanks

@crazybears,

Darn, please pass on my sympathy to your friend. Holy Family Hospital is a well respected facility and used by many of the "Stars" of Hollywood. They are in Massachusetts but close to the EU for air travel. I don't have a specific doctor recommendation, but have heard some great stories. Micheal J Fox was treated at this facility. I will do some more digging if desired and see if I can get some doctors names that have had great success out of that facility.

Cancer Care Methuen | Massachusetts Cancer Center | Steward Health Care

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I'm really sorry to hear that @crazybears.

I hope that perhaps the link to this clinic specialised on Neurosurgery at the University of Cologne might be helpful in any way.

Patients ? English

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Gamma Knife


Crazybears,
I'm new here and was just surfing around.

There is a high-tech surgical instrument called Gamma Knife that uses triangulated pinpoint focused radiation to kill brain tumors inside the skull without cutting. The cancer cells die and are reabsorbed by the body. alternatives to explore: Cyber Knife.

I don't have personal experience with it, but if I had that diagnosis, I would look towards this technology first.

Best wishes.

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